Why that name

Just a quick note - I chose this title for my blog because if any of you have tried to actually go up the down escalator it is a lot of work. When my son Simon was born, I was figuratively transported to the basement. I was struggling to find out what this meant for our family, and our future. I began a journey on that day, to go up the down escalator. I know it will always be a lot of work to keep going up, but that is what I have to do now to stay out of the basement. Simon has Down Syndrome, but I am choosing every day to make life normal for him and to help us get back to the ground floor. Anytime I forget the joy and stop moving forward, I find myself rapidly descending into the basement again. Thankfully I also have an emergency stop button. He is my Creator and my Father. The One who brings the despair to a standstill when I call on Him. He is my Rock and Refuge. The One I can run to when no one else understands. It may sound cliche, but it's true, I couldn't do any of this without God. He is the reason that some days I can still smile when things are ridiculous inside. That is why the name.

Wednesday, February 13, 2013

There's a bun where?!

Ha!  I got your attention with the title.  As those of you on Facebook may have already realized, we are adding to our little family of four (and a dog) hopefully in early July.  I just had my ultrasound today, and things look normal and cute.  I just love watching the little person wriggling around on the screen.  If it weren't for the angle of my head, I would pay to watch it all day long.  It's so easy to take care of a little person when all you need to do is feed and water yourself.  Throw some vitamins in for good measure, the odd bit of exercise and hope for a good sleep once in a while.  Not much to it.  Once they come out however.....  That part has me a bit nervous.  It's been almost 6 years since I've had a "normal" baby to feed and take care of.  In some ways I discredit Simon as a baby experience because he came with an owner's manual of sorts that told me how much to feed him and how often.  He had so many people keeping track of him, that I really didn't have to do much thinking for myself.  Now I'm going to have to try to remember how to feed a baby without disintegrating, and keeping the baby's gas at bay.  (Tube feeding has it's benefits!  You can pull the burps out and get a gas free baby.) 

Yup, there are many things that I am a bit anxious about having to remember or relearn.  If I had more energy I would aim to do lists of things before said infant enters the external environment and demands more attention.  Sadly, my energy is fairly low, so that limits my ambitions quite a bit.

I finished reading Andrew's cousins blog book a couple of weeks ago, and had my head full of the large words that are common in his vocabulary.  For a couple of days I had "cacophony" stuck in my head.  I had so many amazing posts that were rolling around between my ears, but not a spare moment to put proverbial pen to paper.  That is the loss of a writer with an active family.  Speaking of which - I had some specific things I was going to write about this evening, but there are only one or two thoughts have bothered to remain contained within my grey matter.  (Myron's words are coming back to me!)

Lately I've been noticing Simon's sense of humor.  After he is done his meal and he signs, "Thank you" and "excuse me" he gets this twinkle in his eye and a silly grin on his face.  He waits until I have the washcloth wet and ready to clean him up and then he hides his hands behind his back in the chair.  He says, "where" which comes out as "deh" but I know what he means.  Then I have to hunt for his hands.  He thinks he's so funny!  I love our little game.  I can't wait to see what other kinds of jokes he's going to play.  (I mean other than let's hide my big sister's library book under the fridge and watch Mommy search the entire living room, dining room and kitchen for it.) 

He's also taken to closing doors.  This could be a really good thing, or maybe not so helpful.  He is now tall enough to finally be able to just reach the doorknobs the pull the doors closed.  So far it's worked out alright at home, but on Christmas Eve, he almost had me panicking.  At that point he wasn't pulling the doors closed, he could just push them and lock himself in somewhere.  I left him milling through the festive crowd at church, and noticed that I couldn't find him.  I looked in the usual spots, and even the unusual ones.  Someone kind of chuckled at me for checking toilets, but really - if he had fallen in....  Anyway, I looked and looked and got a couple of other people to help me look too.  I was ready to announce that he was missing and it was an emergency when I decided to check the most obvious place.  I had noticed earlier that the cry room door was closed, which in my head at the time eliminated it from the search area.  Now however I had that last stone to turn over before I gave in to full fledged panic.  I opened the door, and there was a very sad wet face staring up at me crying hoarsely.  The poor guy had people standing right outside the door and they didn't hear him crying.  I was so thankful that nothing had happened to that little stinker.  I can't even imagine how it must feel to have a child really go missing, and for days on end.  Stay safe little ones.

In other growing up news, his signing vocabulary is now up to close to 160 or so.  He's also working on perfecting the signs so that they don't look quite so similar and are actually gender specific.  "Mom" is no longer the same as "Dad".  So glad we got that straightened out.  He is also  starting to talk a bit more.  He is saying "Mom" exactly like it I spelled it.  I'm also very happy to no longer be "Bum" or "Bub". 

One final brag item before I take myself to see the sandman - Simon loves to do laundry!  He had a temper tantrum the other day because we weren't doing laundry in the correct order.  Usually I get him to start helping after I've done one load in the washer.  Then he helps me move the wet clothes into the dryer, and press the button.  After that we dump more clothes into the washer, add the soap, pull the knob and check to make sure the water is running.  This time I had a clean load done, and was only taking items out of the dryer.  We put clothes into the washer, but there was nothing yet to put into the dryer.  The poor little guy was so devastated that he couldn't put stuff into the dryer and press the button.  Oh the trials of being a three year old stay-at-home child. 

Thanks to everyone who's been reading these very sadly random posts, and we continue to welcome your comments and prayers as we journey down this road called parenting, and up the down escalator with our family.  Thankfully I've been blessed that I've somewhat moved from going up the wrong escalator to just walking the wrong way on the moving sidewalk.  I think we might actually be gaining ground as we travel along.  I still have moments where if I stop looking and moving forward I get mired down by watching other kids his age do normal three year old things, but I think I'm still hanging on.  Most of the time. 

Thanks again and until later,